|As I crawl out from under a bout of influenza A, which was made dangerous for me by my anti-rejection drugs, I contemplate genetics, and how my family has been seriously impacted by auto-immune disease. Somehow aspects of my environment triggered my immune system to go into overdrive and attack the biliary mitochondria in my liver as though attacking a foreign body. My transplant has not eliminated my body’s tendency to do this; it was not a cure. It has given me some more years if I am fortunate, and I struggle to understand what has happened to me and to adjust to my new chimeric life.
|While spending day after day in bed recovering from the flu, I read Carl Zimmer’s book She Has Her Mother’s Laugh, about the history of heredity and the impact of science upon our understanding of it. The book ended with the author pondering about gene editing of human eggs and embryos (CRISPR), which is currently in the global news as scientists struggle with the ethics and wisdom of using this powerful technology. My head is spinning with all this: I am creeped out by it, and can envision disaster resulting from gene editing, but had the gene(s) responsible for my immune system’s unwarranted attack been successfully edited away, my transplant would have been unnecessary, and I would not have passed such genes on to my children and grandchildren. That is a heavy burden. If, if, if.
|Although I learned about mitochondria in science class in high school, it was Madeleine L’Engle’s science/fictional account of Charles Wallace’s illness in A Wind in the Door that first reawakened my curiosity about mitochondria when my children were young. At that time I had no idea how important mitochondria would become in my life. However, it was not L’Engle’s forces of cosmic evil which messed with my mitochondria, but genetics and environment. My love of science fiction is accompanied by my life-long love of science. After all, my father taught genetics at the university level. <a href=”https://en.wikipedia.org/wiki/A_Wind_in_the_Door”>
|Myth, science, science fiction, religion, folklore, myth….I love it all. It is about trying to understand our place in the cosmos and on Earth. In a confusing, fast-paced, and precarious world, Spring brings me hope. Spring = new life. Today is my donor’s 30th birthday. Happy birthday, Robb! I would not be here without your extremely generous and miraculous gift of part of your liver. I am grateful every day.|
Archive for the ‘Women’ Category
This link is via Ann, and the blog Exopermaculture. Renate Hiller on “Handwork” caught my attention because one of the activities I’ve loved doing lately is working with fibers. This video expresses it beautifully.
Today my friend Gail stopped by on her way traveling from West Hartford, CT to Syracuse, NY. Reconnecting with old friends is heartwarming. We told each other stories about our lives and caught up. With such a soul friend, even though time had passed, it was as though we had seen each other yesterday; the conversation was immediate, free, deep, and easy.
In our past, we shared raising and home-educating our children; we found we embraced similar spiritual interests; we were both involved in creative pursuits involving textiles, and we’ve shared the joys and challenges of life.
Gail reminded me that, no matter the time and distance between friends, we are never far apart. For this I am grateful.
At the end of our visit, we enjoyed a Japanese meal together. All in all, it was a very satisfying day.
On the sanctuarywithoutwalls events blog you will find a post which includes the registration brochures for events which will be facilitated by my friend Phoebe and me:
Growing Older, Growing Wiser: Becoming an Elderwoman ~ For women 55 and older, on the second Tuesday of each month, September 14, 2010 – March 8, 2011 ~ 7-9 PM
To download the registration brochure with all the details, click on the following link:
After being away and entertaining guests, I’ve had many little details to attend to here. It feels great to make these available, at last! Check out the events site for details and other happenings.
After spending a week at a science and religion conference with more than 100 people,
I came home to my husband’s college reunion at our home, with about twenty of his college friends, some of whom he hadn’t seen for forty years.
This morning I was on a radio show about the upcoming series for women Growing Older, Growing Wiser: Becoming an Elderwoman –
and now I’m planning for the annual campout of Wellspring Haven.
The weekend after that, I’ll be attending a college reunion of my own.
It’s been an intense summer of gathering in communities of diverse people. And it will continue into September, when I’ll be attending a Céile Dé gathering.
So much richness, and so little time to blog about it!