Spiritual sustenance, naturally.

Archive for the ‘Seasons’ Category

Spring, Mitochondria, & New Life

As I crawl out from under a bout of influenza A, which was made dangerous for me by my anti-rejection drugs, I contemplate genetics, and how my family has been seriously impacted by auto-immune disease. Somehow aspects of my environment triggered my immune system to go into overdrive and attack the biliary mitochondria in my liver as though attacking a foreign body. My transplant has not eliminated my body’s tendency to do this; it was not a cure. It has given me some more years if I am fortunate, and I struggle to understand what has happened to me and to adjust to my new chimeric life.

 

While spending day after day in bed recovering from the flu, I read Carl Zimmer’s book She Has Her Mother’s Laugh, about the history of heredity and the impact of science upon our understanding of it. The book ended with the author pondering about gene editing of human eggs and embryos (CRISPR), which is currently in the global news as scientists struggle with the ethics and wisdom of using this powerful technology. My head is spinning with all this: I am creeped out by it, and can envision disaster resulting from gene editing, but had the gene(s) responsible for my immune system’s unwarranted attack  been successfully edited away, my transplant would have been unnecessary, and I would not have passed such genes on to my children and grandchildren. That is a heavy burden. If, if, if.

 

Although I learned about mitochondria in science class in high school, it was Madeleine L’Engle’s science/fictional account of Charles Wallace’s illness in A Wind in the Door that first reawakened my curiosity about mitochondria when my children were young. At that time I had no idea how important mitochondria would become in my life. However, it was not L’Engle’s forces of cosmic evil which messed with my mitochondria, but genetics and environment. My love of science fiction is accompanied by my life-long love of science. After all, my father taught genetics at the university level. <a href=”https://en.wikipedia.org/wiki/A_Wind_in_the_Door”>

 

Myth, science, science fiction, religion, folklore, myth….I love it all. It is about trying to understand our place in the cosmos and on Earth. In a confusing, fast-paced, and precarious world, Spring brings me hope. Spring = new life. Today is my donor’s 30th birthday. Happy birthday, Robb! I would not be here without your extremely generous and miraculous gift of part of your liver. I am grateful every day.

YULE

And so the Shortest Day came and the year died

And everywhere down the centuries of the snow-white world

Came people singing, dancing,
To drive the dark away.
They lighted candles in the winter trees;
They hung their homes with evergreen;
They burned beseeching fires all night long
To keep the year alive.
And when the new year’s sunshine blazed awake
They shouted, reveling.
Through all the frosty ages you can hear them
Echoing behind us – listen!
All the long echoes, sing the same delight,
This Shortest Day,
As promise wakens in the sleeping land:
They carol, feast, give thanks,
And dearly love their friends,
And hope for peace.
And now so do we, here, now,
This year and every year.
Welcome Yule!

———Susan Cooper

https://en.wikiquote.org/wiki/Yule

Photo by Jedediah Berry, Amherst, MA

Photo by Jedediah Berry, Amherst, MA

 

Gallery

April Snowstorm

April 4, 2016 - Winterberry Holly and Forsythia in side yard.

April 4, 2016 – Winterberry Holly and Forsythia in side yard.

“Perhaps what moves us in winter is some reminiscence of far off summer … The cold is merely superficial; it is summer still at the core, far, far within.”

– H. D. Thoreau

Our house.

April 4, 2016 – Our house.

 

April Snow, Main St

April 4, 2016 – Our Town.

 

Statue

April 4, 2016 – Cemetery Statue.

 

April 4, 2016 - Cemetery Pond.

April 4, 2016 – Cemetery Pond.

 

April 4, 2016 - Underbrush.

April 4, 2016 – Underbrush.

Photos by K. Houk and S. Rockmuller.

Easter: Rebirth & Renewal

It has been some time since I posted here. As some of you may know from my earlier posts, my health has been challenged in a big way for the past five years. Actually, it began before that, about twenty years ago, but doctors couldn’t determine what was wrong for fifteen of those years. By the time I was diagnosed, I was at Stage 3 out of 4. The autoimmune condition (Primary Biliary Cholangitis with Autoimmune Hepatitis overlap) is incurable, but a liver transplant can prolong life.

On November 23rd, 2015, I was finally transplanted, at Cleveland Clinic in Ohio. Miraculously, an anonymous living donor had come forward. This person is unknown to me. He or she had intended to donate to another person, and went through the health workups and evaluation, but the transplant did not happen. I do not know why not. The donor decided to go ahead anyway, donating a piece of his/her liver to a stranger in need. Because of my poor quality of life, my blood type and my relatively small size, I was chosen. I received the left lobe of the donor’s liver, and the pieces grew back to almost full size very quickly for us both. My new liver grew to almost full size by eight weeks post-surgery!

K with plush liver - Version 3

At six months after the surgery I will be allowed to (anonymously) contact the donor through the clinic to express my gratitude. If all goes well, years will be added to my life. Transplantation is not a cure, for the problem does recur in some cases, but already the new organ has made a huge difference in my quality of life and well being.

Now I am recovering from the surgery. The most dangerous time, regarding rejection of the transplant, is in the first three to four months post-surgery. I have made it past that point with no rejection episodes. Hurrah! Full healing will take at least a year. But today, to celebrate Easter and enjoy this fine early Spring day, I walked in the woods with my husband, looking for signs of seasonal renewal.

Easter 2016, Renewal!

This was my worship today, because being immuno-compromised by anti-rejection drugs, I am still avoiding groups of people in close quarters. This year especially, Easter is very meaningful to me, as I experience life anew, with energy, gratitude, and hope for the future.

PS – Share Life! Be an organ donor!

The Three Norns, Dec. 8 in Chatham

norns sign 11:13

Tomorrow, this sign will hang in a store window at 12 Main Street in Chatham, NY. My two daughters and I will be selling our handmade goods, from 11 am to 4 pm. I have been able to work slowly on some small items for the sale.

Below are some more tiny worlds, small living terrariums, which will be for sale. I also will show some woolen goods, ornaments, and some jewelry. Stop by if you are in Chatham!

Terr.Heart

Terr. Heart

Woman in heart terrarium.

Woman in heart terrarium.

Reindeer in terrarium.

Reindeer in terrarium.

Eagle in terrarium.

Eagle in terrarium.

Close-up of eagle.

Close-up of eagle.

Clematis

By the door of the studio, clematis is producing many flowers after the rain. Today the sun was bright, and I could almost see the flowers opening before my eyes.

 

cropped-clematis-5.jpg

The flowers look like a creature’s maw when they open.

Clematis opening

The centers are amazing!

Clematis center

 

Such beauty.

Clematis group

 

 

Variable Spring

First the snowdrops and a couple of crocuses appeared.

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Then more snow.

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Now the snow has melted, and the flowers have reemerged.

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And there are more to come.

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